Website: https://www.rarechromo.org/
Email: info@rarechromo.org
Helpline: 01883 723356
Address: The Stables, Station Rd W, Oxted RH8 9EE
We aim to provide specialist information relating to many hundreds of different rare chromosome disorders and autosomal single gene disorders, to inform parents, carers and the professionals working with them.
We aim to provide specialist information relating to many hundreds of different rare chromosome disorders and autosomal single gene disorders, to inform parents, carers and the professionals working with them.
We aim to be there for families and individuals, offering a listening ear, an understanding, sympathetic presence to support them when they need us most, often at or just after receiving a diagnosis of a rare chromosome disorder or an autosomal dominant single gene disorder.
Find us on Face Book @rarechromosonedisorderssupportgroup and Twitter @Unique_charity
Registered Charity Number 1110661