Website: https://www.tourettes-action.org.uk/
Contact Form: https://www.tourettes-action.org.uk/65-contact-us.html
Telephone: 0300 777 8427
Address: Tourette Syndrome (UK) Association, The Meads Business Centre, 19 Kingsmead, Farnborough, Hampshire, GU14 7SR
Tourette Syndrome is an inherited, neurological condition, the key features of which are tics, involuntary and uncontrollable sounds and movements. TS is a complex condition and a large amount of people with the condition will also experience co-occurring features and conditions.
The Tourettes Action Helpdesk provides confidential and impartial support to adults and children living with Tourette Syndrome (TS).
We know how important it is to have somebody to talk to about your experiences of TS. If you have questions or concerns about TS and want to speak to someone who understands the issues,
We welcome calls and emails from people with TS as well as their friends, family and any professionals who are seeking information and guidance. We deal with a wide range of subjects, including:
- Information on getting a diagnosis
- Support available after diagnosis
- Advice on handling TS in school
Please note that our Helpdesk does not give diagnoses or advice on medications; you should contact a medical professional to discuss such issues. Our aim is to listen to you in a supportive manner and to provide you with information..
Opening hours
Our helpdesk is run by volunteers, and due to current shortages in our team we are running a limited service:
Helpdesk open times- Monday, Tuesday 6-8 pm and Thursday 9 am-8 pm
We aim to return your email within 48 hours and live chat will be available Monday-Friday 9-3.
Confidentiality
The Helpdesk is a confidential service. For our statistical purposes, and to inform you of local TA events, we add service users contact details and the reason for the call to our secure database. You can chose to be contacted about news, research, local events etc. We will not share the details of your call or email with any person outside of the organisation. However, in extreme circumstances, where there is a real and present risk of harm to a caller or another individual, we will break confidentiality.
Find us on Face Book @tourettesaction and Twitter @tourettesaction
Registered Charity Number 1003317.