Fragile X Society (The)



Contact Form:

Telephone: 01371 875 100

Helpline:  01371 875 100

Address: The Fragile X Society, Rood End House,6 Stortford Road, Great Dunmow, Essex CM6 1DA 

The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome. At that time there were no facilities to support and inform families about any aspect of fragile X, and so the Society came into existence. The charity has now grown to consist of a team of dedicated employees and volunteers, supporting thousands of individuals and families.

Our Aims

  • To provide information and practical guidance to support and empower individuals and families living with Fragile X Syndrome and Fragile X-associated conditions
  • To educate and inform the public and professionals about Fragile X in order to raise awareness and understanding of the syndrome and improve support for all individuals affected by Fragile X
  • To encourage research into all aspects of Fragile X through the participation of our family members in Fragile X studies and to publicise the results.
  • To raise funds to carry out our work


Find us on Face Book @thefragilexsociety and Twitter @fragilexuk

Registered Charity Number 1127861

Leave a Reply