Dystonia Society

Dystonia SocietyWebsite: https://www.dystonia.org.uk/
Email: click here to submit a form
Telephone:  020 7793 3651 (General enquiries)

Helpline Telephone:  020 7793 3650 (Support and information on dystonia.

Address: Dystonia Society, 2nd Floor, 89 Albert Embankment, Vauxhall, London, SE1 7TP

UK-wide charity providing support, advice and information for anyone affected by the neurological movement disorder known as Dystonia. Dystonia is characterised by involuntary and uncontrollable muscle spasms which can force affected parts of the body into abnormal, sometimes painful, movements or postures.

The Dystonia Society runs a helpline, signposts support groups, provides small grants, peer support, and insurance services.

The Dystonia Society was established in 1983 by a small group of people affected by dystonia, and the aims and mission of those original founders are the core of our work today.

Our mission is a world without dystonia 

To achieve this mission: 

We aim to support and advocate for people living with the impact of dystonia to ensure they experience the best quality of life for all of their life whilst we drive forward towards critically needed treatments and ultimately a cure. 

We do this by: 

  • raising awareness of all forms of the debilitating set of conditions known as dystonia,   
  • by supporting and advocating for those affected by a diagnosis of dystonia through our support and advocacy services and local support group network, 
  • by facilitating research into critical advances in treatments and ultimately the search for a cure. 

Follow us on Face Book @DystoniaSociety and Twitter @DystoniaUK

The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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