Telephone: 01344 771961 Fax: 01344 762661

Address:DEBRA House ,13 Wellington Business Park ,Dukes Ride ,Crowthorne ,Berkshire 
RG45 6LS

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.

DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group. 

Our vision:

We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB.

DEBRA focuses its work in two areas:

  • We fund pioneering research to find effective treatments and, ultimately, a cure for EB.
  • We provide care and support to improve the quality of life for individuals and families living with EB.

We provide practical and emotional support, financial help and advice, respite breaks, and information on lots of different aspects of living with EB.


Find us on Face Book @DEBRACharity and Twitter @CharityDEBRA


Registered Charity Number England and Wales 1084958 and Scotland SC039654

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