Contact Form: https://www.arthrogryposis.co.uk/contact
Helpline: 07508 679351 (open Monday-Friday, 9 am-5 pm)
Address: TAG, 22 East Croft Terrace,Lowca,Whitehaven CA28 6PY.
Arthogryposis Multiplex Congenita is a rare congenital disorder characterised by multiple joint contractions, and can include muscle weakness and fibrosis.
TAG runs a help desk dealing with questions or concerns about the condition, or for those who want to speak with someone who understands the issues involved. The helpline is open Monday-Friday, 9 am-5 pm; Call 07508 679351. Alternatively, email the helpdesk: firstname.lastname@example.org
TAG also offers support on a regional cluster basis; volunteers in the contact network have a wide experience of Arthrogryposis. Each one lives day-to-day with the condition and are willing to share their personal knowledge and skills, whether it be that they themselves are affected, or their child.
TAG arranges area get-togethers and social events, family weekends, and an adventure camp for teenagers.
Find us on Face Book @arthrogryponsis.co.uk and Twitter @TAG_AMCUK
Charity Number 1164158