Website: https://www.musculardystrophyuk.org/
Email: info@muscular-dystrophy.org
Telephone: 020 7803 4800
Helpline: 0800 652 6352 (Monday-Friday, 8.30 am-6 pm)
Address: 61 Southwark Street, London, SE1 0HL
We are a registered UK charity for individuals and families living with muscle-wasting conditions.Our charity provides free care and support for babies, children and adults affected by muscle disease, funds world-class research to find treatments and cures, provides grants towards equipment and campaigns to raise awareness and bring about change.
Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.
Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them-but we do.
West Midlands Muscle Group:
The West Midlands Muscle Group is a great opportunity to meet people and their families in the region affected by muscular dystrophy or a related condition, as well as share information and advice through peer to peer support.
The group also fights to strengthen neuromuscular services in the region and help ensure that patients get the support they need.
As well as discussing experience of services, group meetings also focus on other topics important to people affected by muscle-wasting conditions.
Contact: David Stephenson at Muscular Dystrophy UK on d.stephenson@musculardystrophyuk.org or 020 7803 4838.
Find us on Face Book @musculardystrophyUK and Twitter @MDUK_News
Registered Charity No. 205395 SC SC039445